CareAware Journey

Insights and practical advice on caregiving from subject matter experts

Getting Started

 

The Journey of Caregiving

Video | x minutes
Marina Keers

No matter where a caregiving journey starts, it's important to have a plan. We make plans before we go on vacation, we make plans before we retire. And caregiving is another situation in our lives where we need to have a plan.

 

Becoming an Educated Caregiver

Video | x minutes
Denise Saxman, LCSW

Trying to be as prepared as possible for each step along the way can make a huge difference for caregiver well-being, but also for the person you're taking care of.

 

Loss of Normal

Video | x minutes
Virginia Caine, M.D.

The stress of trying to coordinate your own employment plus taking care of a loved one can be a tremendous demand on caregivers.

 

I Wish I Had Known

Video | x minutes
Virginia Caine, M.D.

A lot of my patients and family members say, "Wow, I wish I had known all of this. I suffered so much those first few weeks and months taking care of my loved one."

 

The Beauty of Respite

Video | x minutes
Marina Keers

What we hope people get out of respite services, or any kind of respite, is an emotional and physical break from caregiving to alleviate stress.

 

Dealing with Difficult Behaviors

Video | x minutes
Kathy Pellman

Many techniques can be used to redirect difficult behaviors in people living with dementia.

 

Pick Your Battles

Video | x minutes
Christine Turo-Shields, LCSW, Psychotherapist

If it doesn't matter, it doesn't matter. When at all possible, offer a choice.

 

Preventing Learned Helplessness

Video | x minutes
Marina Keers

Caregivers sometimes overstep and do things for the care recipient that they could do themselves and that they should do themselves, because it adds to their dignity and helps them maintain independence.

 

Legal and Financial Planning

Paying for Long-Term Care

Video | x minutes
Claire E. Lewis, Elder Law Attorney

The cost of long-term care today is so high that most people cannot afford it, unless you have long-term care insurance or qualify for Medicaid.

 

Legal Documents for Caregivers

Video | x minutes
Claire E. Lewis, Elder Law Attorney

Legal documents are extremely important in planning for end-of-life care. Some are available online and easy to download. Others are so significant that it is best to consult with an attorney.

 

Understanding Advance Directives

Video | x minutes
Claire E. Lewis, Elder Law Attorney

Advanced directives are directions in advance of one's incapacity. If you don't give thought to what you want to happen at end-of-life, sometimes those decisions are taken away from you.

 

When to Use a Special Needs Trust

Video | x minutes
Clifton Dennis, Elder Law Attorney

For families who have adult or minor children with disabilities, the best thing they can do is set up a special needs trust for that child.

 

Communicate Your Wishes with Healthcare Personnel

Video | x minutes
Claire E. Lewis, Elder Law Attorney

It is a chronic problem in our society that we create advanced healthcare directives, but we don't take them with us every time we go to a doctor or facility. So how do we communicate this information to the appropriate healthcare professional?

 

Sharing Key Documents with Your Family

Video | x minutes
Claire E. Lewis, Elder Law Attorney

I cannot tell you how many times I've had individuals come into my office who are now dealing with an incapacitated parent, and they are completely clueless about where key documents are.

Negative Emotions of Caregiving

 

The Ambivalence of Caregiving

Video | x minutes
Christine Turo-Shields, LCSW, Psychotherapist

Many individuals move into caregiving for a loved one naturally, and others out of a sense of duty. That can create a lot of ambivalence or struggle for that individual who finds themselves in that caregiving role.

 

The Impact of Chronic Stress on the Body

Video | x minutes
Virginia Caine, M.D.

Evidence-based medicine has clearly said that if someone has chronic stress to their body over an extended period of time, you are at risk for developing a life-threatening illness yourself.

 

Surviving the Holidays

Video | x minutes
Marina Keers

Holidays can be a big disruption in routine. When somebody has a lot of medical care that they need or assistance with those daily living tasks, holidays can be incredibly stressful for the caregiver.

Oxygen Masks

The Caregiver Health Prevention Bundle

Video | x minutes
Malaz Boustani, M.D.

Implementing the Caregiver Health Prevention Bundle will positively impact the well-being of a loved one with dementia and also the caregiver’s health and well-being.

 

Building Your Caregiver Team

Video | x minutes
Mandla Moyo

Building a team that's both wide and deep will ensure that your caregiving journey is a successful one.

 

Retaining Your Social Connections

Video | x minutes
Denise Saxman, LCSW

Sometimes when you're taking care of a loved one, your friends don't really know what that experience is like. They don't know what's going on and they may not know how to help. You need those people in your life.

 

The Gift of Laughter

Video | x minutes
Denise Saxman, LCSW

The firmer and the better response sometimes to something stressful is to laugh.

Preventing Abuse

Keep Your Eyes Open for Signs of Abuse

Video | x minutes
Ken Bennett, Elder Law Attorney

As a caregiver, you're leading a team to provide the care necessary for your loved one, and in doing so, you must keep your eyes open for signs of abuse.

 

The Caregiver and Care Recipient Dyad

Video | x minutes
Malaz Boustani, M.D.

If your loved one is suffering from a cognitive disability, they may have difficulty understanding their environment or communicating with you. Add to that your own stress and inability to communicate effectively, and you and your loved one could end up hurting each other.

 

Signs of Abuse

Video | x minutes
Andrea Qualitza

Learn to recognize signs of physical, verbal and financial abuse.

 

Power Over Financial Affairs

Video | x minutes
Ken Bennett, Elder Law Attorney

Financial exploitation is becoming quite prevalent in instances where folks may not have a lot of money, but they have a steady income stream.

 

Be Alert for Financial Abuse

Video | x minutes
Cynthia Oetjen, J.D.

 Use credit freezes and credit reports to monitor for signs of elder financial abuse.

 

Financial Abuse is Underreported

Video | x minutes
Andrea Qualitza

A lot of times, older adults are not going to be forthcoming that they are being exploited or abused.

 

 

 

 

Additional Resources

Call the Aging & Disability Resource Center:

(317) 803-6131 or (800) 432-2422